Friday, March 14, 2014

Spring, here we come!

Spring has returned. The Earth is like a child that knows poems.
—Rainer Maria Rilke

Here we are again, the last days of winter (I certainly hope this is the case from the frozen north east.) The days are longer the sunlight is brighter and feels so much warmer.  What a difference a year makes?  Last year at this time we had a screaming, inconsolable, gassy, “colicky,” baby on our hands. It would take almost 10 more weeks to get the diagnosis of FPIES.

This year we are working through other obstacles like food trialing. Good news is that Jack just passed organic pears! Yes! A new food pass is such a huge victory against this disease.

Jack and his twin brother are 17 months on Sunday.  Could we nearly half way through this disease that is FPIES? Could Jack be one of the lucky ones who outgrows this by age 3? We remain incredibly positive and hopeful.  Each new food pass brings us closer to our wish for him.

We have planned our first vacation as a family of 4 for the first days of summer.  It involves staying with family, visiting many friends and the boys’ first airplane ride and staying away from home as toddlers. Should be exciting! The stress is already beginning.  My sister-in-law is amazing and has offered to pre-shop for Jack’s special food requirements.  This will make things so much less stressful as we arrive, so grateful.

We will be looking to the wonderful FPIES community for support this season as we rapidly approach the year mark of our journey with FPIES and no longer have an infant anymore but a full blown toddler (two full blown toddlers, one with FPIES and one without.)  This comes with many new exciting experiences and adventures and well as challenges.

Spring is here, rebirth, growth, progress and change is in the air…